Janeth is a girl who was born with a rare condition called myelomeningocele, the most serious form of spina bifida, causing permanent paralysis. The standard of care for a child with this birth defect is usually surgery shortly after birth to prevent infections and to help save the spinal cord from damage, followed by regular doctor visits every 6 months throughout childhood and annually thereafter. Janeth, however, did not receive continuous evaluations or treatments by medical professionals after the surgery, which led to multiple complications. Because of her disability and the family’s lack of transportation, Janeth has never attended school.
We are working to improve Janeth’s well-being by providing medical care and treatment, getting her a proper wheelchair, obtaining her birth certificate, referring her to a physical rehabilitation center to begin therapies, and supporting her family.